Stuff co.nz 2 August 2015
Toni-Marie Matich’s eldest daughter suffers from intractable epilepsy – a seizure disorder that cannot be controlled with conventional medicine. It led the Hawkes Bay mother-of-five to found United in Compassion (UIC), which advocates for New Zealand-based research into the therapeutic effects of cannabis-based medicines. The paediatrician caring for her daughter just happens to be the Children’s Commissioner, Russell Wills.
And that’s led to the unlikely but powerful alliance of Wills and UIC, teaming up with NZ Drug Foundation, to campaign for broader access to medicinal cannabis. It’s raised the prospect that it could soon become as readily available as morphine.
For Wills, juggling both roles could be a political minefield, but he says its not an issue: as a doctor, he can see the daily impact of what these “devastating diseases do to children and their families”. He’s not short of stories of desperate and vulnerable families who have gone to “extraordinary lengths to obtain treatments at enormous cost and extreme risk that then aren’t effective”.
“I think doctors are desperate,” he says, “to see patients have access to effective treatments.”
Research and random-control trials of cannabinoid products are underway in Israel and the United States and the results of those trials could be just months away – which could mean a New Zealand-approved product could be available by next year, once manufacturers have produced a product and passed MedSafe checks.