Stuff co.nz 2 October 2015
For most of Alisha Butt’s life, she has suffered ongoing and severe seizures caused by a genetic disorder.
The 20-year-old has the mentality of a toddler and is unable to speak. Because of her epilepsy, she requires constant care from her parents and her doctors say she has presented a huge challenge to the medical profession.
Patients like Alisha, whose seizures do not successfully respond to anti-epileptic drugs are considered to have treatment-refractory epilepsy. Alisha has been admitted to hospital several times and suffered side effects after trialling different medications.
Nothing had worked until Sativex was prescribed in mid-September.
Sativex contains cannabidiol with tetrahydrocannabinol, or THC, the main psychoactive component of cannabis.
Pharmac is currently considering funding the drug but there are no guarantees and the family is desperate for the solution which they say could save their daughter’s life.